The assurance of study subjects' privacy and confidentiality is fundamental to the enrollment of participants in clinical research. At the same time, the number of datapoints collected and commodified by the commercial world on each individual has increased exponentially. The potential overlap or convergence of these datastreams, whether intentional or inadvertent, threatens the promise of privacy. This session will explore the range and means of data collected in the pursuit of human research and the limits of protections possible in today's digital world.
CEU: 1.00 ACRP
Speaker:
Robert Romanchuk, CIP, Chairperson, Univo IRB, Univo IRB
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