This session will review the ways in which critical representatives, including patient and caregiver advocates, from across the research landscape can be meaningfully engaged by sponsors and sites to co-develop effective, patient-facing processes or resources. Through the lens of an ongoing community-engaged project, steps and strategies to recruit, engage with, and retain key informants will be presented and discussed. Participants will come away with an appreciation of the opportunities that sustained relationship-building affords a project, as well as tips and techniques for including patients and community members from initiation through dissemination, and beyond. Topics to be covered include health literacy concepts, clear communication strategies, and workgroup facilitation techniques.

CEU: 1.00 ACRP

Speaker:

• Sylvia Baedorf Kassis, MPH, Program Director, Multi-Regional Clinical Trials Center of Brigham and Women's Hospital and Harvard